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Birth Defects



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California Environmental Health Tracking Program

850 Marina Bay Pkwy, P-3
Richmond, CA 94804

(510) 620-3038
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Last Edited: 9/30/2010

Birth Defects Resources

The resources below contain links to more information about birth defects.  Resources listed do not necessarily represent the views of the California Environmental Health Tracking Program.  We welcome suggestions and additions to the resource list.


California State Government

California Birth Defects Monitoring Program  

The California Birth Defects Monitoring Program (CBDMP) collects and analyzes data to identify opportunities for preventing birth defects and improving the health of babies. CBDMP also provides information about birth defects and resources for support services:  http://www.cdph.ca.gov/programs/cbdmp/Pages/default.aspx 

California Prenatal Screening Program

The California Prenatal Screening Program focuses on detecting birth defects during pregnancy and provides information about screening for some birth defects: http://www.cdph.ca.gov/programs/pns/pages/default.aspx

 

California Children's Services

California Children's Services (CCS) is a state program for children with certain diseases or health problems.  Through this program, children up to 21 years old can get the health care and services they need:  http://www.dhcs.ca.gov/services/ccs/Pages/default.aspx

 

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Federal Government

National Center on Birth Defects and Developmental Disabilities  

CDC-NCBDDD collects and analyzes birth defect data and provides resources on how to prevent birth defects:  http://www.cdc.gov/ncbddd/bd/default.htm 

 

CDC National Environmental Public Health Tracking Network

The Centers for Disease Control reports on birth defects data by county for select states:  http://ephtracking.cdc.gov/showBirthDefects.action

 

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Non-Governmental Organizations (NGOs), Advocacy, and Community Organizations   

 

Birth Defects Research for Children, Inc

Birth Defects Research for Children is a resource for free birth defect information, parent networking, and birth defect research through the National Birth Defect Registry:  http://www.birthdefects.org/

 

March of Dimes  

March of Dimes is a nonprofit organization dedicated to improving infant health by preventing birth defects, premature birth, and infant mortality:  www.marchofdimes.com

 

National Birth Defects Prevention Network  

The National Birth Defect Prevention Network (NBDPN) is a volunteer-based organization that addresses the issues of birth defects surveillance, research and prevention under one umbrella by maintaining a national network of state and population-based birth defects programs.  NBDPN has birth defects surveillance reports available on its website:  www.nbdpn.org 

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Data Resources  

California Birth Defects Monitoring Program

Information on how to access data from CBDMP can be found here: http://www.cdph.ca.gov/programs/CBDMP/Pages/DataandSurveillance.aspx

 

National Birth Defects Prevention Network

Publications of the National Birth Defects Prevention Network include:

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