California Department of Public Health logo: three likenesses of people colored blue, green, and orange  
Last Edited: 12/14/2012

International Consortium for Autism Registry Epidemiology (iCARE)
10/2012 -

Population-based disease registry systems are invaluable research resources due to their non-biased coverage, prospective data collection, large size, and length of follow up. The relative rarity of autism, as well as many perinatal conditions, makes use of large multi-national registry-based samples an ideal approach for filling important gaps in our understanding of autism temporal and geographic trends, phenotypic characteristics, family and life course patterns, and the relations with perinatal factors. The International Collaboration for Autism Registry Epidemiology (iCARE) utilizes such registry systems from Denmark, Sweden, Finland, Norway, Australia and Israel. A U.S. site is being added in the form of data from California, assembled for autism monitoring by CDPH. The data will be used for investigating candidate factors for perinatal adversity in relation to autism, beginning with parental age, gestational length and fetal growth, season of birth and mode of delivery. Because such a solid foundation has been established, it is now possible for iCARE to apply for additional funding to compile more complex data, such as 3-generation family linkages and laboratory analyses of archived biospecimens, and design more complex analyses.