The resources below contain links to more information about birth defects. Resources listed do not necessarily represent the views of the California Environmental Health Tracking Program. We welcome suggestions and additions to the resource list.
- California State Government Resources
- Federal Government Resources
- Non-Governmental, Advocacy, and Community Organizations
- Data Resources
California State Government
California Birth Defects Monitoring Program
The California Birth Defects Monitoring Program (CBDMP) collects and analyzes data to identify opportunities for preventing birth defects and improving the health of babies. CBDMP also provides information about birth defects and resources for support services: http://www.cdph.ca.gov/programs/cbdmp/Pages/default.aspx
- Birth Defects Fact Sheets
- CBDMP has created fact sheets for some of the most common birth defects: http://www.cdph.ca.gov/programs/CBDMP/Pages/BirthDefectFactSheets.aspx
- The fact sheets also list resources for support services for birth defects
California Prenatal Screening Program
The California Prenatal Screening Program focuses on detecting birth defects during pregnancy and provides information about screening for some birth defects: http://www.cdph.ca.gov/programs/pns/pages/default.aspx
California Children's Services
California Children's Services (CCS) is a state program for children with certain diseases or health problems. Through this program, children up to 21 years old can get the health care and services they need: http://www.dhcs.ca.gov/services/ccs/Pages/default.aspx
Federal Government
National Center on Birth Defects and Developmental Disabilities
CDC-NCBDDD collects and analyzes birth defect data and provides resources on how to prevent birth defects: http://www.cdc.gov/ncbddd/bd/default.htm
CDC National Environmental Public Health Tracking Network
The Centers for Disease Control reports on birth defects data by county for select states: http://ephtracking.cdc.gov/showBirthDefects.action
Non-Governmental Organizations (NGOs), Advocacy, and Community Organizations
Birth Defects Research for Children, Inc
Birth Defects Research for Children is a resource for free birth defect information, parent networking, and birth defect research through the National Birth Defect Registry: http://www.birthdefects.org/
March of Dimes
March of Dimes is a nonprofit organization dedicated to improving infant health by preventing birth defects, premature birth, and infant mortality: www.marchofdimes.com
National Birth Defects Prevention Network
The National Birth Defect Prevention Network (NBDPN) is a volunteer-based organization that addresses the issues of birth defects surveillance, research and prevention under one umbrella by maintaining a national network of state and population-based birth defects programs. NBDPN has birth defects surveillance reports available on its website: www.nbdpn.org
Data Resources
California Birth Defects Monitoring Program
Information on how to access data from CBDMP can be found here: http://www.cdph.ca.gov/programs/CBDMP/Pages/DataandSurveillance.aspx
National Birth Defects Prevention Network
Publications of the National Birth Defects Prevention Network include:
- State Specific Birth Defects Profiles: http://www.nbdpn.org/state_profiles.php
- A complete listing of Congenital Malformations Surveillance Reports: http://www.nbdpn.org/archives/